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Starbright Foundation http://www.starbright.org The Starbright Foundation is a computer network where hospitalized children and teens can interact with a community of peers and help each other cope with the day-to-day realities of living with illness.
Cystic Fibrosis Foundation http://www.cff.org This organization offers information about the illness, public policy, clinical trials and local chapters.
Boomer Esiason Foundation http://www.esiason.org This former NFL quarterback has a personal interest in CF - his son has the disease - and has created this foundation to help find a cure.
The Big Fun Box http://www.thebigfunbox.org The Big Fun Box Foundation was started by a family who learned how to entertain themselves during frequent long hospital stays. They developed this box of toys and other fun stuff as a way to give pediatric patients comfort and fun while in the midst of stressful situations.